"FAP Is So Much More Than the Colon"
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Jenny Jones is back, and a lot has changed. Since her last visit, she lost her mother to FAP complications, launched Life's Apolyp Foundation as a 501 (c) (3) nonprofit, and is correcting the record on something she got wrong last time: FAP is not just a colon disease. It's a whole-body condition that can show up in the eyes, skin, teeth, liver, and more, and the gaps in that understanding are delaying diagnosis and putting families at risk. This conversation covers the foundation, the research funding gap, the APC gene, and what it looks like to build a legacy out of grief.
CHAPTERS / TIMESTAMPS
00:00 Introduction to Chronic Truth Podcast
00:47 Understanding FAP and Its Gaps
09:13 The Launch of Life's Apollop Foundation
16:04 Community and Advocacy for FAP Patients
24:48 Future Goals for Life's Apollop Foundation
CONNECT & RESOURCES
Jenny Jones:
🌐 lysapolyp.org
The Chronic Truth Podcast:
🌐 Website: chronictruthpodcast.com
📱 Instagram: @ChronicTruthPodcast
📘 TikTok: @chronictruthpodcast
💬 Share Your Story: Testimonials
📋 Community Survey: Survey
Production Partner: Podcast Mechanic